At just 43, Dr. R, a dedicated physiotherapist working at a multispecialty hospital, found his world gradually closing in. Ironically, the healer became the one who needed healing—but the answers were elusive.
What began as occasional eye twitching soon escalated into relentless, uncontrollable eyelid spasms—Blepharospasm. As months passed, his jaw and facial muscles also began tightening involuntarily—Oromandibular Dystonia. Together, these formed a rare neurological condition called Meige Syndrome, a disabling form of segmental dystonia.
This wasn’t just a medical condition—it was a thief, stealing from him the most basic joys of life. He could no longer keep his eyes open long enough to read a prescription or observe a patient’s posture. Eating became a painful chore. Breathing was interrupted by spasms so intense they bordered on suffocating. Speaking was near impossible.
The compassionate physiotherapist who once restored movement in others was now confined to isolation, silence, and shadows.
He knocked on every possible door. Neurologists. Neurosurgeons. Movement disorder specialists. Time after time, he was told: “There’s no cure. Try medications or Botox. That’s all we can do.” He tried them all—every pill, every injection—but his symptoms only worsened. Hope started to dim.
That’s when he approached me, We spent time not just reviewing his scans or prescriptions—but his journey. His frustration. His fears. His silent cries for help. As a Functional Neurosurgeon, I have seen how Meige Syndrome can devastate lives—and how advanced neuromodulation can offer a real chance at freedom.
For him, Deep Brain Stimulation (DBS) wasn’t just a treatment—it was hope reborn.
We planned and performed the procedure with precision and care. DBS, through a tiny electrode targeting specific circuits in the brain, calms the erratic signals that cause dystonia. And the change? Almost miraculous.
Within days, he opened his eyes, ate without choking, breathe with ease, and spoke without struggle. For the first time in years, he watched a movie with his family—eyes open, tears flowing, not from spasm, but emotion.
He’s back at work now—his healing hands touching lives again, his voice guiding patients through rehabilitation, his presence once again a beacon of care in his hospital.
To every patient & caregiver: Don’t stop at “nothing more can be done.” Advanced neuroscience can rewrite stories. And for Dr. R, your story is not just about recovery. It’s about reclaiming purpose, passion, and identity. From one healer to another—welcome back.
Dr Manish Baldia | Functional Neurosurgeon
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